We made it home from Albuquerque safe and sound after a long, 16-hour day. We were exhausted!! We saw Dr. Libby and his initial reaction was to give Brooke another shot of GCSF. The $3,000 shot that makes Brooke's bones hurt and has positive effects of only 10 days. Ugh. He left the room to go call an Infectious Disease doctor for a consult and came back a few minutes later, re-examined the spots and decided since she is healing on her own that he wouldn't do anything. He said the course of action we are taking isn't the usual course for this type of infection, but that since what we're doing seems to be working - to keep on doing it. The spots on the right leg look TONS better but she has two new spots on the left leg that are getting a little angry looking. I'll keep doing our thing and see what happens. Brooke also had bloodwork done and the level is still at 100. Pray that her neutrophil levels rise! She is at such high risk being immune deficient AND severely neutropenic! It's frightening.
Brooke is excited about going to school tommorow. She hasn't been since week 2 of January. Dr. Libby said to wash our hands all the time just to be safe. Will advise the teachers at school to do the same. We'll see how Brooke handles school. This will be the ultimate test. Everyone knows that this is a "wait and see" time...and it may or may not work? Once flu season hits, she'll most likely be back at home quarantined again. We have to protect her in every way possible from germs.
Thank you all for the prayers and words of support. Please keep them coming. Pray for Brooke's safety as she enters back into the school population. Pray that the people dealing with her use common sense and every precaution necessary to keep her healthy. Pray for the neutrophil levels to return to normal. This would greatly provide a layer of protection that Brooke desperatly needs. Pray for Mike and I as we continue to care for the skin infection and all of her other medical needs. Summer was easy...fall and winter are the challenges.
God is the ultimate healer!!
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