Rough Day

Yesterday was just one of those days. There are really no nice words to describe it. It started out with Brooke having a seizure early yesterday morning. I don't think it was a grand mal, but I can't figure out exactly what kind it is? She has had 3 or 4 like this now and they all pretty much mimic each other. Either the sound she makes or the shaking wakes me up and I find her propped up on her right elbow jerking. It typically lasts anywhere from 10 seconds to maybe 25 seconds and then stops. She usually breaks a sweat and has labored breathing for a minute or two following it. She is coherent within a minute or so and the entire process from onset to totally ok is less than 5 minutes. These are very odd.

The day proceeds with communication issues regarding the respite providers which led to other issues which still have not been resolved. My people tolerance is pretty much gone by this point in the ballgame. Now it's time for the bi-weekly trip to the cancer center for a Neupogen shot. Ok, this was the first time I've taken Brooke with the shot being done in the treatment room. Was not mentally prepared for this! My nerves were already frazzled so it's easy to understand my sadness with seeing the 3 people who were in there undergoing chemotherapy. And while I'm wondering about their situation, I got the sense that they were just as curious about ours. After all, a trip to the treatment room at a cancer center for any reason can't be good. And there we sat. Just a note here to say that these guys are awesome. So patient, and compassionate. So, the shot was given and we walked out of the room. I was fighting back the tears and Brooke managed not to...she proceeded to grab a hold of the bathroom door handle and throw a big fit. It was all I could do to pry her away. In fact, it wasn't until the nurses brought her the basket of goodies that she did give in. Not exactly sure what was up? We fInally made it to the car where I fell apart. Just "one of those days."

The rest of the day was shot for me, I didn't know whether to hide under my desk or cry all afternoon. So...I did what unfortunately seems to come so easy to me these days...I gripped. (Thank you L and D and T for being such a captive audience.) Mike came home exhausted from his first day of school and Brooke's stomach hurt from the high-powered antibiotics she's been on for the past week. We all spent the evening chilling out, which is exactly what this family needed!