Friday, March 12, 2010

Not sure what to think?

We saw our Hematologist in Albq. yesterday and honestly...I'm not quiet sure what to make of the appointment? He didn't see anything in her bloodwork that perked up his ears. He said the slightly elevated liver levels weren't anything he would be concerned over and the specialized protein test that our Immunologist ordered (that came back normal) was the one test he would've done had it not already been done. It basically showed that Brooke makes proteins in her blood, which is a good thing. He did a thorough check of her lympth nodes and looked at the spots she has on various parts of her body. He told us since she isn't sick or having recurring infections he didn't see anything that alarmed him, so he didn't feel the need to do anything. He told us to see him as needed. I guess the frustrating thing is that he didn't seem to understand why we were there, so it was obvious he didn't receive the information I faxed him earlier in the week. He had to ask us if we had determined last year that her spleen was enlarged. SERIOUSLY? What happened to reading up on the patient PRIOR to walking in to examine them?

OK, so now what? Is it normal for a blood level to be going out the roof and nothing actually be wrong? I understand it being puzzling to specialists that she not be sick or have recurring infections, but shouldn't all of these puzzle pieces start adding up to something? I'm stunned. I called our Immunologist yesterday and left word for him to call me. I guess the ball is back in his court.

I'm praying for guidance; for direction. I'm asking God to help me figure out the next steps. Please pray with me.

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