We got the results from the blood "re-test" that we did last Friday...the IgM is 100 higher than it was a month ago. DANG! She is sitting at 1810 and 263 is considered high. What is going on? The other protein test that our Immunologist ordered came back normal - Praise God! I faxed all results to our Hematologist in Albq. Friday morning so he will have some time to think about it before our appointment on the 11th. Hope he got it!
I stayed home with Brooke Thursday for some mommy time. There's days every so often that she needs her mom and nothing else will do. Thursday was one of those days and honestly, I needed it too. A little decompression never hurts! She did a lot of sleeping, we went for a ride in her yellow car, hit happy hour for a root beer, and then spent an hour outside. It was beautiful; 72 degrees with some wind, but much too nice to be inside, so we did bubbles and danced and enjoyed the weather. What a nice day!
On Friday, we saw our Primary Care Doctor to bring him on board with what's going on and to help establish a baseline for Brooke and her care. We had only seen him once prior to this appointment so we're getting used to him and he's trying to figure us out. (Gotta wish him luck there! Ha!!)He's super sweet and very thorough, which I appreciate. He was complimentary on the path we're taking with Brooke. It's nice to hear that from a doctor because we wonder sometimes if what we're doing is enough. Or even if we're going in the right direction. He feels we are, and I appreciated the vote of confidence from him. It's a guessing game a lot of the time. He said we need to continue to operate in preventive mode with Brooke and address the blood issues with the Hematologist. I feel like we both have a better understanding now as to what the game plan is and what his role is. I'm hoping our new "team of local doctors" and their roles in Brooke's care will help take some of the pressure off Dr. Libby. We've got a plan! HOORAY!!!
The home healthcare nurse came Friday afternoon to take Brooke's monthly INR. OK, so the initial goal was to hit 2.0-2.5, which we never did. 1.8 is as high as we could get it so this became Brooke's norm. In January and again in February it was down to 1.4. Now, as of Friday, it's at 2.2. What's up with that? I've always heard people talk about how crazy Coumadin is and I agree. There is no rhyme or reason for it going up or down in Brooke's case because her diet hasn't changed. I have become a vegetable policeman getting onto her when she eats certain things. In fact, she gets to eat very little green or leafy vegetables. Spinach once since August, and it was a very small amount. She loves spinach! I suggested to the nurse that she ask the doctor if we can recheck the levels in a week or two instead of waiting the full month. With all of the other blood issues going on...we've got to be careful. 2.2 is pretty thin blood, or at least it is for Brooke! And since I don't know what the IgM means...we can't assume they aren't connected. Dr. Libby will have to figure this out for us!
Thank you God for another beautiful, sunshiney day! I love it. Birthday party tomorrow and Brooke is about to drive me insane asking for it. That's another blog for another day! We appreciate your friendship and your prayers.
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