Dr. Clayton called Monday (the Immunologist) and he is referring Brooke to National Jewish Hospital in Denver. There is a team of doctors there that will evaluate Brooke and make treatment recommendations. The process of getting there will take some time (insurance, scheduling, accomodations, etc.), so the ball is now just starting to roll. Dr. Clayton said to expect at least 6-8 weeks for an appointment. That's what I figure will happen just because it's the most inconvenient time for us. We have Special Olympic state games in Albuquerque the 22nd of May and our trip to Hawaii the first week of June. Neither will be interferred with...they'll have to work around those two times. I really hope this will occur in June so Mike can go with me.
Please pray for guidance for Dr. Clayton as he makes the arrangements. Pray for us to be put with a knowledgable, compassionate team of doctors that will listen to us, be open to what we are saying, and will take some of the existing results and not feel the need to have to start from scratch. Our biggest fear is having to put Brooke through a bunch more tests that cause pain. I pray for doctors without egos. I pray that this team is trusting of what has already been done and will only do tests that are 100% necessary and not treat Brooke like a circus act. (Yes, it happens. We've had doctors wanting to cut a section of her skin out just to look at it under the microscope. NO!) I pray that everyone that comes in contact with us has an understanding with the trauma this places on Brooke and the anxiety levels of all of us. And please pray for strength, patience and tolerance on my behalf.
I'll keep you posted as I know more.
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