Brooke got the GCSF (Neupogen) shot Thursday morning. So far so good. We're trying to keep ahead of the pain by continuing Tylenol every 4 hours. I expect tonight and tomorrow to be a little painful for her, but maybe not? I need to research other side effects of this shot; Brooke's appetite has been incredible lately. All she wants to do is eat!
The infection looks MUCH-MUCH-MUCH better. HOORAY! We finished one of the antibiotics today just to start another dose of the same thing. It is definitely working. She looks really good today. She's been happy and just smiles all the time. I love that! She is pale though. Very pale. Hoping her INR levels are down somewhat. Will test again Tuesday. I had a message on the machine from Denver, so I will call them back Monday so we can get the ball rolling on the appointment(s)there. I'm hoping for sooner versus later. I would love to get some of the medical yuk over with before we leave for vacation in June.
I spent hours today putting together a medical notebook for the doctors in Denver. I've made it as simple as it can be for them to locate anyting they need to know pertaining to Brooke over the past 3 years. And I underestimated the amount of records I had because I had to jump up to the next size of notebook. Tomorrow I will work on putting my own medical notebook together instead of carrying it in folders like I've been doing. Yep, it's come to this. It's easier to be prepared and organized than to have to dig for something or say "I have that but it's at home." The Denver notebook is impressive, if I may say so. And yes, I'm sure this is one of the reasons people find me intimidating. It's my daughter...I do what I need to do.
We just got to meet Hank IV. What a cute baby!! 18 pounds at 4 months...he's a very big baby! Absolutely beautiful!! Brooke was 21 pounds at 3 years! We all got to hold him and I took pictures of Brooke with him, daddy and grandpa. She loves all of the Hanks...they've always been so nice to her. It was a nice visit.
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